Track 11: Palliative Care in Genetic Disorders

Genetic disorders may likewise be complex, or polygenic, multifactorial, triggered by at least one gene abnormalities.  Currently, very little research detailing issues that are looked toward the end of life for individuals with genetic disorders, and there is an absence of a good model of care to pursue for end-of-life treatment or withdrawal of treatment. Technological advances have extended life for various individuals with genetic diseases. The fend of-life program has sources in the hospice development with individuals experiencing genetic disorders. A nurse assists the sick patient to make the most of living.

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